Sophia's Saving Grace

Turning Illness into Wellness
One Family at a Time


 The Foundation
Our Mission

As I sat in the hospital for months on end, watching people come and go, I decided to try and form a foundation for kids and families affected by childhood illness.  Our main focus is to help families with GI issues.  This section of the medical world is under funded, under researched, and there is little awareness  about these conditions.
 
I have had the great honor of traveling to Washington dc to speak on capital hill about gi health, this only lit my fire more than ever.  I have also got the great honor to talk with many people in the medical profession about Sophia and her GI issues.  

 My mission is to pay it forward for all the help that people have given my family.  2013 will start this campaign.  While I fill out our paper work for our 501c and wait for the official non-profit status we have decided to start with small projects to get our feet wet.
Our First Project

Welcome to the World of Tubies

As I was in the Doctor’s office last week I found myself thinking of what we could do to give back. Dr M was running two hours late so there was plenty of time to think. I was sitting by a new mom and her son had a feeding tube. She was saying how nervous she was to take him home. I quickly wrote down all the connections I had that help me through tough times and gave her my phone number. Today I received a text from her saying how thankful she was for the support.
She said “I would have gone crazy without the information you gave me”

With that I decided that I want to compile all my resources and make “welcome to the world of tubie bags”

Sophia has a stuffed animal that is just like her (it has all her same cords). It is a great way to teach everyone what all her cords mean and she loves showing it off. I would like to put one of those in there and I book about tubies. Some pamphlets for the parents and so on…

Anyone who would like to help please let me know.  or send to
Sophia's Saving Grace
n6796 co rd xx
Holmen, WI 54636
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